Overview

In 1998, the Foundation for Women’s Cancer created the Allied Support Group consisting of newly formed national ovarian cancer advocacy organizations to promote open dialogue and collaboration among the advocacy groups. The Foundation agreed at that time to host semiannual meetings and to serve as the “administrator” of the Allied Support Group. Over the ensuing few years, the Allied Support Group expanded its membership to include other gynecologic cancer related advocacy and research organizations. As currently constituted, the group represents most of the leading national and some international organizations that have interest in women’s gynecologic cancer health.

In addition to meeting semiannually to review the activities of their individual organizations, members of the Allied Support Group have collaborated on a variety of special educational, advocacy and research projects. A partial list of these projects follows:

  • Educational presentation/slide kits for medical professionals and lay public
  • Ovarian National Resource List
  • Ovarian Cancer Product Guide
  • Ovarian Cancer Survivor’s Course
  • WCN/WCN Sisterhood of Survivorship
  • Newspaper supplements
  • News/magazine articles
  • Research grants (the Foundation has received funding from various allied support group members to support research grants)
  • Speakers at each member’s conferences
  • Educational materials
  • Exhibiting at member’s conferences
  • Government relations/congressional receptions

Further recognizing the importance of the Allied Support Group, in 2002 the Foundation appointed Ronald Alvarez, MD, a member of the Foundation’s Executive Committee, to a newly established position of Advocacy Chair. The Advocacy Chair serves as the liaison between the Foundation and the Allied Support Group members and chairs the Allied Support Group meetings. The current Advocacy Chair is Dr. Linda R. Duska, who joined the Foundation’s Board of Directors in 2011.

Spotlight

Visit the Sisterhood of Survivorship page to read “Dena’s Story” — by a vulvar cancer survivor who has shared her story and wise words, and channeled her energy into her National Race to End Women’s Cancer team.

Awareness

Vaccine efficacy against vulvar infection with HPV 16/18 was comparable to the efficacy found against cervical infection 4 years after vaccination, according to researchers with the National Cancer Institute.

Research

The Foundation has published its 2014-2015 Research Grants and Awards Booklet with Applications. Please consider applying to become part of an elite group of physician-scientists committed to the well-being of women at risk for/affected by gyn malignancies.

Education

The next Ovarian Cancer Survivors Course will be Saturday, July 26, 2014 in Boston. For more information on courses, click here.