Other Resources

The Foundation for Women’s Cancer is dedicated to widely sharing information about gynecologic cancers. We therefore have reciprocal links to many websites, both corporate and not-for-profit, and greatly value these relationship. The link to these sites does not constitute or imply endorsement by the Foundation for Women’s Cancer regarding the views, opinions, or references to specific commercial products or services described on the sites.

Advocacy/Support

  • After Breast Cancer Diagnosis ABCD is a one-to-one personalized mentoring service that provides women with emotional support from survivors during their breast cancer journey now.
  • Break Away From Cancer  Breakaway from Cancer represents a partnership between Amgen and four nonprofit organizations dedicated to empowering patients with education, resources and hope, wherever they may be in the cancer care continuum.
  • Cancer101  CANCER101′s mission is to empower cancer patients and their caregivers to take control over their diagnoses and engage them as active partners in their care, by arming them with a toolkit to navigate their cancer journey.
  • Cancer Care, Inc.  CancerCare provides free services for anyone affected by cancer. Their services include: counseling, support groups, educational workshops, publications, financial assistance and community programs.
  • Cancer Hope Network is a national nonprofit organization that provides free and confidential one-on-one emotional support to cancer patients, their caregivers and their family members. Cancer Hope Network matches cancer patients or family members with trained volunteer cancer survivors who themselves have undergone and recovered from a similar cancer experience.
  • Cancer Schmancer Movement  Cancer Schmancer works to empower women to become medical consumers; to listen to our bodies, ask the right questions of our doctors and seek second opinions, we can prevent cancer and, if we still end up with it, detect cancer in its earliest stages.
  • Cancer Support Center  The CSC provides FREE comprehensive resources that help anyone affected by cancer (the person with cancer, loved ones, friends and bereaved of all ages) improve their quality of life during the cancer experience.
  • Cancer Support Community  In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The CSC provides such services as support groups, counseling, education and healthy lifestyle programs through 50 local affiliates, 100 satellite locations and online.
  • Cancer Wellness Center  This is a non-profit organization that provides supportive services and health information free of charge for people diagnosed with cancer and their loved ones.
  • Carol’s Cause  Carol’s Cause is a not-for-profit organization that provides monetary grants to medical professionals who continue their education in gynecologic oncology.
  • CCare Lynch Syndrome  Lynch syndrome is a genetic disease that dramatically increases the risk of cancer, especially colon and uterine cancers. Through education, CCare aims to increase the awareness of Lynch Syndrome, identify affected individuals, and help diagnose cancers at their earliest possible stage.
  • Claudia Cohen Research Foundation  The Claudia Cohen Research Foundation is dedicated exclusively to support research leading to the immunological treatment, control, and prevention of gynecologic cancer with a special emphasis on gynecologic sarcoma.
  • Centers for Disease Control’s Inside Knowledge: Get the Facts About Gynecologic Cancer  This campaign raises awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal, and vulvar. It encourages women to pay attention to their bodies and know what is normal for them, so they can recognize the warning signs of gynecologic cancers and seek medical care.
  • Childhood Gynecologic Cancer Association  The Childhood Gynecologic Cancer Association is a nonprofit organization whose mission is to provide a forum on childhood gynecologic cancers for providers, patients and their families; to obtain current information for education and clinical trials; to develop a comprehensive referral resource center and registry; to advance research in childhood gynecologic cancers.
  • Conquer Cancer Foundation  Part of the Ameican Society of Clinical Oncology, the Conquer Cancer Foundation is committed to conquering cancer worldwide by funding breakthrough cancer research and sharing cutting-edge knowledge.
  • CONVERSATIONS!  A newsletter for those fighting ovarian cancer.
  • EyesOnThePrize.org  This is a web community created to provide information, shared experience, resources, support and company for women with gynecologic cancer.
  • Facing Our Risk of Cancer Empowered  FORCE is the only national nonprofit organization devoted to hereditary breast and ovarian cancer.
  • Gilda Radner Familial Ovarian Cancer Registry  This is a national computer tracking system that stores data for women with two or more close relatives who have been diagnosed with ovarian cancer. They offer a hotline manned by cancer specialists to answer your questions about ovarian cancer and provide informational literature.
  • Granulosa Cell Tumour Foundation New Zealand  GCTF NZ was created to provide information about granulosa cell tumour of the ovary to both patients & the medical community; provide support services to survivors of GCT; raise awareness within medical, pharmaceutical and government agencies; and to search for, and/or solicit new research specifically focused on GCT and the development of new therapeutic treatments.
  • Gynecologic Oncology Group  GOG is a non-profit organization with the purpose of promoting excellence in the quality and integrity of clinical and basic scientific research in the field of Gynecologic malignancies.
  • Hope for Two  Hope for Two…The Pregnant with Cancer Network is a national non-profit organization for women diagnosed with cancer during pregnancy. Our mission is to connect women who are pregnant with cancer with other women who have been pregnant with the same type of cancer.
  • HysterSisters  Woman-to-woman hysterectomy support.
  • Lotsa Helping Hands  Lotsa Helping Hands connects people who need help with those who want to give it through an online “community.” Their website makes it easy for each person to know what to do and when.
  • The Lydia Project The Lydia Project provides free supportive services for women coping with any kind of cancer anywhere.  Services for every women include the receipt of a designer tote with encouraging contents (there is a small shipping fee); as well as monthly supportive outreach for one year.  Locally in the Augusta, GA area, The Lydia Project hosts a monthly support group for GYN Oncology patients.
  • Lynne Cohen Foundation  The Lynne Cohen Foundation for Ovarian Cancer Research is dedicated to supporting and enabling collaborative, multi-institutional research combating ovarian cancer through prevention and early detection.
  • National Cervical Cancer Coalition  NCCC’s mission is to help women, family members and caregivers battle the personal issues related to cervical cancer and HPV and to advocate for cervical health in all women by promoting prevention through education about early vaccination, Pap testing and HPV testing when recommended.
  • National Coalition for Cancer Survivorship  NCCS, founded by and for cancer survivors, advocates for quality cancer care for all people touched by cancer and provides tools that empower people to advocate for themselves.
  • National Comprehensive Care Network  The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 21 of the world’s leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer.
  • National Ovarian Cancer Coalition  Through national programs and local chapter initiatives, the NOCC’s goal is to make more people aware of the early symptoms of ovarian cancer. The NOCC provides information to assist the newly diagnosed patient, to provide hope to survivors, and to support caregivers.
  • Norma Livingston Foundation  We are committed to improving the survival rate and quality of life for women with ovarian cancer by raising awareness and promoting education about ovarian cancer. We also raise money through various events that help fund research.
  • Oncology Nursing Society Foundation  The ONS Foundation is a national public, non-profit, tax-exempt, charitable organization headquartered in Pittsburgh, PA and dedicated solely to oncology nurses from around the world.
  • Ovarian Cancer Canada: Cancer de l’Ovaire Canada Ovarian Cancer Canada is a registered Canadian charitable organization whose mission is to overcome ovarian cancer, providing leadership by: supporting women living with the disease and their families; raising awareness in the general public and with health care professionals; and funding research to develop early detection techniques, improved treatment and, ultimately, a cure.
  • Ovarian Cancer National Alliance  OCNA educates health care professionals and raises public awareness of the risks and symptoms of ovarian cancer. The organization advocates at a national level for increases in research funding for the development of an early detection test, improved health care.
  • Ovarian Cancer Research Fund  OCRF is a not-for-profit organization dedicated to the formulation of early diagnostic treatment programs and research toward the ultimate conquest of ovarian cancer. OCRF also seeks to support patients and their loved ones in understanding this disease and its treatment as well as to raise public awareness and provide educational information, including resource materials.
  • Patient Advocate Foundation  PAF is a non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys.
  • Project Hope for Ovarian Cancer Research and Education  Project Hope educates women and their families about their individual risk of ovarian cancer and the specific screening and risk-reducing measures appropriate for them. It supports research directed at early detection, prevention, and more.
  • Saint Louis Ovarian Cancer Association  St. Louis Ovarian Cancer Awareness is committed to impacting ovarian cancer survivorship by promoting awareness of early warning signs and standard of care, funding ovarian cancer research, and supporting survivors.
  • Sandy Rollman Ovarian Cancer Foundation  The mission of the Sandy Rollman Foundation is to promote awareness of ovarian cancer by educating both women and physicians about the disease, to advocate for early diagnostic testing and more effective treatments and to raise funds to help advance research towards a cure.
  • Self-help for Women with Breast or Ovarian Cancer  SHARE’s mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. We provide telephone support, support groups, educational programs, and advocacy activities.
  • Suzanne Lee Prince Foundation ReKindle Hope for Vulvar Cancers  The Foundation’s mission is to provide information and emotional support to those touched with vulvar/neuroendocrine cell cancers, promote awareness and proactively seek and support research.
  • Walk With Sally  Walk With Sally is was created to help children dealing with emotional experience of living with or losing a parent or sibling to cancer. They offer free mentoring support programs and services that provide an emotionally safe environment for children to share their difficult experience with someone who has suffered the same.

Information/Education

  • American Association for Cancer Research  Through its programs and services, the AACR fosters research in cancer and related biomedical science; accelerates the dissemination of new research findings among scientists and others dedicated to the conquest of cancer; promotes science education and training; and advances the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world.
  • American Cancer Society  ACS is a nationwide, community-based health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
  • Association of Cancer Online Resources  ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders. Use one of ACOR’s 127 online communities to connect with people like you online and share information and support.
  • Cancer.net  Cancer.net provides timely, oncologist-approved information to help patients and families make informed health care decisions. Cancer.Net was launched in May 2002 as People Living With Cancer (PLWC). In April 2008, the website was relaunched as Cancer.Net (www.cancer.net).
  • Department of Defense  The Department of Defense has a vision to find and fund the best research to eradicate diseases and support the war fighter for the benefit of the American Public. Their mission is to provide hope by promoting innovation research, recognizing untapped opportunities, creating partnerships, and guarding the public trust.
  • International Gynecologic Cancer Society  IGCS is a not for profit, non-political, independent organization contributing to the prevention, treatment and study of gynecologic cancer and the quality of life of women suffering from gynecologic cancer throughout the world. The IGCS promotes and facilitates the enrichment and dissemination of knowledge and skills of its members in the areas of prevention, treatment and study of gynecologic cancer.
  • Marsha Rivkin Center for Ovarian Cancer Research  The mission of the Marsha Rivkin Center is to save lives and reduce suffering through improved treatment, detection and prevention of ovarian cancer. They aim to accomplish this through funding promising scientists with their Scientific Scholar Award, providing ovarian cancer screening and organizing educational symposium.
  • MEDLINEplus  MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand, for free.
  • National Center for Complementary and Alternative Medicine  NCCAM is the Federal Government’s lead agency for scientific research on complementary and alternative medicine (CAM). The mission of NCCAM is to define, through rigorous scientific investigation, the usefulness and safety of complementary and alternative medicine interventions and their roles in improving health and health care.
  • National Women’s Health Resource Center  Also known as HealthyWomen (HW), this organization provides independent health information for women. Through their wide array of online and print publications, HW provides health information that is original, objective, reviewed by medical experts and reflective of the advances in evidence-based health research.
  • Office on Women’s Health within the Department of Health and Human Services  The OWH (within the US Department of Health and Human Services) provides national leadership in advancing women’s health through public policy, research, service delivery, and education.
  • PatientResource  The goal of Patient Resource is to empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.
  • Vital Options  Vital Options International is a not-for-profit cancer communications organization with a mission to facilitate a global cancer dialogue. The organization’s signature program, The Group Room, features video interviews with the world’s leading oncologists, researchers, oncology nurses and other professionals.

Personal Care Products

  • 4women.com / BeauBeau  Visit this site to to browse beautiful scarves specifically designed for women and girls with medical hair loss. Uniqueness over mass production. Scarves to complement your wardrobe form casual to elegant. A fun and fashionable alternative to wearing a wig!
  • A Fitting Experience Mastectomy Shoppe, Inc.  This company sells breast prostheses, bras, swimwear, and accessories.
  • Beautiful Lengths  Beautiful Lengths is a partnership between Pantene and the American Cancer Society to provide free, real-hair wigs for women with cancer.
  • Bosom Buddy Breast Forms  This company sells a variety of breast prostheses by direct mail.
  • Cancer Shop USA  Cancer Shop is the “first and only patient requested, doctor approved on-line store to offer products to help patients with the side effects of chemo and radiation.” The shop offers over 300 products.
  • Chemo Savvy  This company sells wigs, hats, scarves, turbans, and accessories for women and children through online or catalog orders.
  • Contour Solutions  Contour Solutions sells breast prostheses, bras, swimwear, sleepwear, lingerie, wigs, and other cancer recovery products to men and women.
  • Cool Water Cones—Vaginal Dilators  After surgery or radiation on the female reproductive organs, many patients experience a shortened or narrowed vagina. On these occasions, your doctor may suggest the use of a vaginal dilator to help restore and maintain your vaginal health. Cool Water Cones are a revolutionary new vaginal dilator that may help speed your surgical recovery and may increase your comfort during pelvic exams and intercourse after vaginal trauma.
  • Doma Designs  This online store sells hats, bandanas, and accessories for women, men, and children.
  • Hai’s Wigs  This online retailer sells wigs and hair accessories.
  • Hats, Scarves and More  This company specializes in hats, turbans, wigs, fine cotton scarves and sleep caps for people with hair loss due to cancer, chemotherapy, alopecia and other medical conditions.
  • Headcovers Unlimited  At Headcovers Unlimited, our specialty is hats, turbans and other headwear for hair loss and cancer patients. Standard hair loss headwear goes beyond the ordinary with our stylish hats, turbans, and wigs designed for you.
  • Headwear, etc.  Hats, caps, turbans and headwear for women and men.
  • Knockout Panties  Knock out! is a developer, marketer and distibutor of stylish performance panties. The brand’s patented odor and moisture technologies are engineered in natural fabrics to meet the needs of today’s demanding lifestyles.
  • Lindi Skin  Lindi Skin manufactures and distributes clinically-proven skin care products that soothe and relieve the effects of radiation, chemotherapy, and day-to-day wear resulting from cancer treatments.
  • Lolly’s Locks  Provides free wigs for cancer patients.
  • Look of Love International  This online store sells wigs, hairpieces, hair extensions, and accessories.
  • Lots to Live For  Lots To Live For, Inc. offers one stop web shopping for patients combating unpleasant side effects from chemotherapy and radiation treatment
  • Madcapz  Madcapz are feminine, fun and colorful caps with a low profile fit designed just for women so the cap fits closer to your head than a regular baseball cap. The adjustable strap makes sizing easy and our 100% cotton fabric makes Madcapz extra soft and comfortable.
  • Make Me Heal  This company sells breast prostheses, bras, swimwear, sleepwear, and other general health and skin care products.
  • Meals to Heal  Meals to Heal provides nutritious, delicious meals that are fresh and customized to your specific needs and tastes, delivered right to your door.
  • Nearly You  This company sells breast prostheses, accessories, bras, swimwear, and other products.
  • Truekare  Truekare’s mission is to provide quality breast forms and breast enhancement products at great prices.
  • Vaginisumus  These medical-grade vaginal dilators are designed to be smooth and comfortable, easy to control, light-weight, and safe.

Professional Societies

  • American College of Obstetricians and Gynecologists  ACOG is the nation’s leading group of physicians providing health care for women. As a private, voluntary, nonprofit membership organization of approximately 55,000 members, ACOG strongly advocates for quality health care for women, maintains the highest standards of clinical practice and continuing education of its members, promotes patient education, and increases awareness among its members and the public of the changing issues facing women’s health care.
  • American Society for Colposcopy and Cervical Pathology  The educational mission of the ASCCP is to improve clinician competence and performance and patient outcomes through educational activities focused around the study, prevention, diagnosis, and management of lower genital tract disorders.
  • Association of Oncology Social Workers  AOSW is a non-profit, international organization dedicated to the enhancement of psychosocial services to people with cancer and their families. Created in 1984 by social workers interested in oncology and by existing national cancer organizations, AOSW is an expanding force of psychosocial oncology professionals.
  • Association of Reproductive Health Professionals  ARHP is the association that brings together health care professionals across disciplines and specialties for evidence based training and network building among committed colleagues.  ARHP translates good science into practice by producing accredited, evidence-based programs for health care professionals across a broad range of topics.
  • Society of Gynecologic Nurse Oncologists  The SGNO is an international organization of nurses and health professionals dedicated to the advancement of patient care, education, and research in the field of gynecologic oncology and women’s health care.
  • Society of Gynecologic Oncology  The SGO is a national medical specialty of physicians who are trained in the comprehensive management of women with malignancies of the reproductive tract. Its purpose is to improve the care of women with gyn cancer by encouraging research, disseminating knowledge which will raise the standards of practice in the prevention and treatment of gynecologic malignancies and cooperating with other organizations interested in women’s health care, oncology and related fields.

Spotlight

Visit the Sisterhood of Survivorship page to read “Dena’s Story” — by a vulvar cancer survivor who has shared her story and wise words, and channeled her energy into her National Race to End Women’s Cancer team.

Awareness

The CDC recently announced that fewer than half of American children are given the HPV vaccination.

Research

As of the July 23 deadline, 55 research abstracts were submitted in hopes of receiving one of only 6 grants from the Foundation. This points to a need for more funding so that the Foundation may award grants to every deserving applicant.

Education

The Gynecologic Cancer Global Health Forum will be Saturday, Sept. 6, 2014 in D.C.. For more information on educational events and courses, click here.